When a parent or loved one starts showing signs of Lewy body dementia, it can feel like you’ve been thrown into a situation no one prepared you for.
One day, they seem fine; the next, they see things that aren’t there, struggle to move, or forget how to perform basic tasks. This can be confusing, frustrating, and exhausting—not just for them but also for you.
That’s why The Kensington Sierra Madre hosted “Lewy Body Dementia, Parkinson’s & Alzheimer’s: Treatments & Diagnosis.”
This virtual session brought together top experts, including Dr. Keith Fargo from the Lewy Body Dementia Association, Dr. Connor Courtney from the Parkinson’s Foundation, and Claire Day from the Alzheimer’s Association.
Let’s break down the latest research, treatment options, and what families need to know about the differences between dementia, Alzheimer’s, and Parkinson’s.
What is Lewy body dementia?
Lewy body dementia (LBD) is a progressive brain disorder caused by the buildup of abnormal protein deposits called Lewy bodies in the brain.
These proteins interfere with brain function, leading to memory loss, cognitive decline, movement problems, and hallucinations.
Think of it this way: Alzheimer’s primarily affects memory first. Parkinson’s starts with movement issues, but Lewy body dementia combines both—often with added visual hallucinations and unpredictable changes in alertness.
The signs of LBD are a mix of symptoms from these better-known conditions, making diagnosing it tricky.
Key Differences from Alzheimer’s and Parkinson’s
- Alzheimer’s disease mainly affects memory first. LBD patients may struggle with thinking and attention before memory loss becomes severe.
- Parkinson’s disease starts with tremors and stiffness. People with LBD often develop movement problems but may also experience confusion and hallucinations early on.
- Lewy body dementia causes fluctuations in cognitive ability—one moment, a person seems sharp, and the next, they’re disoriented. These shifts are much more dramatic than in Alzheimer’s.
What are the early warning signs of Lewy body dementia?
Lewy body dementia doesn’t always begin with forgetfulness. Early signs, like acting out dreams, sudden mood shifts, or an unexplained lack of focus, can be subtle and easy to dismiss.
Some people experience intense nightmares, physically moving or speaking in their sleep, while others develop anxiety, paranoia, or depression with no apparent cause.
Sensitivity to medications, potent sedatives, or antipsychotics can also be an early red flag, known as “drug-induced Parkinson’s.”
Since symptoms fluctuate, it’s easy to misinterpret them as stress or aging, delaying the diagnosis and proper care that could help manage the disease.
What is the progression of Lewy body dementia?
LBD progresses in stages, though symptoms don’t always follow a straight path. It’s unpredictable—some days are good, and others are confusing.
Early Stages (Mild Cognitive Changes & Sleep Disturbances)
- Subtle memory issues (but not as severe as Alzheimer’s early on)
- Trouble with focus and problem-solving
- Acting out dreams in sleep (a condition called REM sleep behavior disorder)
- Mild movement changes (stiffness, small tremors)
Middle Stages (Hallucinations & Increased Confusion)
- Vivid visual hallucinations (seeing things that aren’t there)
- Stiff muscles, trouble with balance
- More noticeable memory loss
- Fluctuations in attention—alert one minute, confused the next
- Sensitivity to medications, especially antipsychotics (which can cause severe reactions in LBD patients)
Late Stages (Severe Cognitive & Physical Decline)
- Difficulty swallowing and speaking
- Increased risk of falls
- Severe memory loss
- Trouble recognizing loved ones
- Full-time care needed
What makes life with Lewy body dementia more challenging?
LBD isn’t just about memory loss—it affects thinking, movement, sleep, and personality.
The following are some of the biggest challenges:
- Fluctuating alertness: One minute, they’re following a conversation. The next, they seem completely out of it.
- Hallucinations & paranoia: They may see people who aren’t there or believe strange things.
- Medication sensitivity: Some drugs that help with Alzheimer’s or schizophrenia can make LBD symptoms worse, leading to extreme confusion or dangerous side effects.
- Physical struggles: Walking, balance, and coordination can be affected—falls are a significant risk.
- Sleep issues: Many experience REM sleep behavior disorder, acting out dreams and sometimes even hurting themselves or their partner in their sleep.
Treatment, therapies, and tools to help
There’s no cure for Lewy body dementia, but treatments and daily strategies can improve quality of life.
Medications
- Cognitive symptoms: Some Alzheimer’s medications (like Aricept or Exelon) can help with thinking problems.
- Movement issues: Parkinson’s medications may help but can also worsen hallucinations.
- Hallucinations & sleep problems: Melatonin and certain antidepressants are often safer than traditional antipsychotics, which can be risky for LBD patients.
Non-Medical Approaches
- Physical therapy: Helps with balance and mobility, reducing fall risk
- Speech therapy: Can help with swallowing and communication issues
- Cognitive therapy & structured routines: Keeps the mind active and reduces confusion
- Music and art therapy: Soothing, engaging, and great for emotional well-being
Adaptive Tools & Technology
- Weighted utensils: Help with tremors when eating
- Smart home devices: Voice-controlled reminders for taking meds or daily tasks
- Fall prevention: Handrails, walkers, and good lighting throughout the house
How The Kensington Sierra Madre can help
Caring for someone with LBD is demanding—physically, emotionally, and mentally. It’s a disease that requires specialized acuity care, and that’s where The Kensington Sierra Madre comes in.
We offer assisted living and three neighborhoods of memory care designed for different stages of dementia, including Lewy body dementia.
Our expert team understands the unique challenges of LBD and provides:
- 24/7 personalized care plans to address cognitive and physical needs
- Therapies like music, art, and sensory stimulation
- Fall prevention strategies and physical therapy support
- Medication management and specialized nutrition
- A warm, engaging community where families feel supported
You don’t have to do it alone when caring for a loved one with LBD. Our team is here to support you on your caregiving journey.
Contact The Kensington Sierra Madre today to learn more about our available floor plans and find the perfect home for you or your loved one.